Today was another stressful day. More phone calls....After a few phone calls from both the Children's Hospital and talking with a neuro-oncologist practitioner and also talking with our neurologist I found out that there is 9-12 different people working on Grayson's case. They all keep saying that his case is really unique. His scans have been sent to all people involved and they have met and talked over what it could be, and what can be done.
Some things they agree on and some things they don't. But they do want to test for one possible thing that could be a genetic disorder (which I thought sounded better then cancer but if you read into this its actually not). The disorder is called